“The pandemic has brought the world to its knees, however in Italy the activism of the associations has been very strong: compared to the past, we find + 48% of innovative activities and + 42% of institutional interventions by associations. In full swing. health emergency there has been a great capacity for innovation on digitalisation, communication, on the active role towards its members, as well as there have been many more opportunities for discussion with the institutions, consequently the ability to represent the rights of patients. Many initiatives promoted by the institutions were born on the thrust of patient associations “. Thus Maria Teresa Petrangolini, director of the Patient Advocacy Lab of Altems, speaking at the presentation of ‘Raise the patients’ voice’, the advanced training course dedicated to patient associations wanted by Janssen (Johnson & Johnson), in collaboration with Altems, the High School of Economics and Management of Health Systems.
“There have always been associations during this difficult historical moment – reiterates Petrangolini – However, they had to change their way of acting to be closer to patients so that they would never feel alone”.
The advanced training course “was created to work together with associations – explains Petrangolini – to help their level of competence and impact in the relationship with the institutions. A good bet that 30 associations and 71 representatives have already collected. For us it is certainly a great responsibility, because there is a strong expectation on the part of the associations that we hope to satisfy. Why this initiative? It is the right thing to do. We have a resource on the move which, however, needs the tools to be able to carry out this role. institutions have understood this well. Not surprisingly, since last June the Ministry of Health has set up a working group that will have to produce a document on the participation of patient and citizen associations operating in health. Certain objectives, such as telemedicine and dematerialization of the prescription, cannot be achieved without the collaboration of patients and associations “.
The calendar of meetings of ‘Raise the patients’ voice’, inaugurated today, will continue until November 27 and includes various modules that will address issues such as the general scenario of healthcare and organizational models, institutional communication and negotiation techniques, development of an integrated communication plan.
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